Developmental Disability, Disability Awareness & Advocacy, Mental Health, Social Work, Uncategorized

Self-Determination: An Introduction

Max doesn’t have Self-Determination in his life. His life is extremely limited. He is not given opportunities to make choices. It’s a same-day, same-shit kind of existence.

Max has a CMH “support coordinator” (they go by other names too….case manager, CMH worker, etc.), but there is no coordination of the supports that he should be receiving to be self-determined.

County CMHs (under the auspices of the Behavioral Health and Developmental Disabilities Administration- Michigan Department of Health and Human Services) are suppose to be a “system” that supports self-determination. They don’t. Go ahead, ask anyone who has an child/adult (especially one that is severely, multiply-disabled) in this “system”, how it works for them. There are some real human, real life problems out there, and the people that could make a difference, are doing nothing. They seem to have a lot of “meetings” and there’s no action. There’s no trickle-down effect. There’s no meaningful reaching out to stakeholders (individuals/families). They really don’t “do” self-determination. At least not without a fight from individuals and families. It’s exhausting.

Locally, several years ago, it WAS getting better. They were going in the right direction, and than people started to retire and “new” and younger people (social workers) came on-board at the CMH here.

They were inexperienced. They had absolutely no idea what they should be doing for those that they were suppose to be working for and on behalf of. They still don’t. They were not and did not want to become familiar with the uniqueness of those that they “support coordinated” for. They didn’t want to educate themselves any further as they progressed in their “careers”. They either never cared, in the first place, when they went into this particular field (human services) – or they were and are just lazy. Maybe “Social Work” sounded kind of good and easy, and something that they could learn all about in college, and BAM! off they went and they got paid to do whatever they were told to do (indoctrinated), forgetting WHY they were in the position that they were in. Forgetting or intentional, it’s all the same. It’s wrong on such a fundamental human level.

I take great offense when it comes to those who have such control over the lives of others – their very quality of lives; their comfort and safety; their happiness – and blow it off.

I’ve seen Max ignored totally between annual Individual Plan of Service meetings (IPOS). If I never said anything; if I never addressed any problems or issues, there would be NO communication at all. I absolutely hate the group-home mentality. Even if a person has no family or friends checking in on them, they have a right – yes a RIGHT to be treated with kindness and dignity and care.

They (CMH’s) KNOW about self-determination and they’re suppose to support that in the mental health system – as Max is someone with a developmental disability – but per usual, he’s even worse off than others, as someone that is nonverbal (has complex communication needs) and non-ambulatory, living in an antiquated living environment that still thinks of itself as providing the basics of what he needs to survive (be warehoused) and that all they have to do. The bare minimum.

That’s SO wrong.

I’m sure that this topic will come up again down the road, because I am trying to make positive changes on Max’s behalf, even as I see things worsening.

I’d really like to hear from other individuals and families; guardians and caretakers, care providers.

I know that the problem is wide-spread.

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Disability Awareness & Advocacy, Mental Health, Uncategorized

In Defense of the Vulnerable – How the Complaint/Appeals Process in Michigan Makes Life Worse

This is all about our most vulnerable citizens. Our friends and family members. All of our loved ones. It’s about those people who are elderly and the disabled who have no family or friends and are at the mercy of those put in charge to make sure that they are cared for. The elderly can be disabled. The disabled can be elderly. Some people are born disabled and others are disabled in accidents and by poor life choices. It happens. Be compassionate. Some are disabled by sickness and disease. No one asked for any of this. There should not be any blame. We’re all unique and are who we are through our life experiences. Namaste’.

EVERYONE isn’t that far away from losing it all – and being poor. Accidents and illnesses happen every day.

We all need to stick together and support each other.

Remember this – everyone in their lifetime will become disabled in some form. Let that one sink in. So…

Below are the beginning questions on the State of Michigan Department of Attorney General’s (AG) Consumer Complaint/Inquiry Form. I looked to the AG on behalf of my son. I had previously filed a recipient rights complaint and went through that process and appeals, locally and at the state-level, which turned out to be a total waste of my son’s time. Six months of his life gone and no one was held accountable for the harm and long-term damage caused. All involved and responsible, got to walk away with no consequences for the medical neglect that he endured and is still dealing with physically.

And so…

Here is the MI Attorney General’s Consumer Complaint/Inquiry Form here (to print out) and online here (to fill in online).

Please be aware of the following:

Complaints and inquiries become public records when they are submitted to the Attorney General’s office, and under the Michigan Freedom of Information Act, copies may be subject to disclosure to anyone who asks for them.

A copy of the complaint will be sent to the business against whom the complaint is issued. An accurate company Fax number will expedite processing.”

(OMG, they actually want to EXPEDIATE this process!)

– A copy of the complaint may be sent to other governmental agencies.

(So if your complaint is against a government agency, you’re fucked.)

” – Please be particularly cautious with information containing your Social Security number, credit card account numbers, etc. for security purposes. If you believe it is necessary to submit such information, you should mail that information and the corresponding complaint instead of sending it electronically.

Do not use punctuation when providing names and addresses.

Wow. Just wow. Nothing like putting a target on your back, eh? No guarantees of protection from retaliation. No protections at all. So if you’re making a complaint against ANYONE (could include a local, county, state business, agency or department) they get a head’s up – so that they can harass you, “threaten” you, retaliate against you in all kinds of ways.

I called the Michigan Attorney General’s office, without giving my name (of course), to ask about “protection against retaliation” if I filed a complaint.

I was told that I probably wouldn’t have to worry (right away), because whoever I was filing a complaint against wouldn’t know “immediately” that I was filing a complaint (unless you fax it – see above- so that the AG’s office can EXPEDIATE the process).

I was told that it would take at least a couple of weeks to fulfill any “freedom of information” (FOIA) request – without mention of the fact that “A copy of the complaint WILL be sent to the business against who the complaint is issued” – so then what? Sit tight?

Oh joy. That just makes me want to get right out there, jump up and down, and scream from the rooftops that my son was harmed. Not.

When I asked this question (about protection from retaliation), the person in the AG’s office had to leave the phone to go “ask someone” about it. Why? Because apparently, no one had ever asked that question before?! Fuck me! Really?

So WHY would anyone ever want to open themselves up to retaliation (which comes in many forms and degrees of severity), making their lives and the lives of their loved one more miserable (and potentially more dangerous)?

I’m curious to know how it works in YOUR state?

I’ve also learned, per personal experience, that the State of Michigan has stacked the deck against any form of justice or accountability/responsibility when it comes to their own legislature, under Michigan’s Mental Health Code.

This ONE paragraph in the decision letter that I received from the MI Department of Health and Human Services (how ironic) DESTROYED any hope of the truth coming out and overcoming evil, while proceeding to hold those responsible for the damage that they caused. It said:

“The Department will review the requested information and either uphold the original decision or return this matter to the (local/original) community mental health for additional investigation and consideration”.

WHY? Why would anyone think that this would be reasonable ANYWHERE, but especially in the United States of America? When it comes to full-disclosure; gathering ALL of the facts, with the expectancy that there would be no conflict of interest, where is the fairness and justice in how appeals are handled? Why would the Michigan Department of Health and Human Services/Department of Recipient Rights send this BACK TO THE LOCAL APPEALS COMMITTEE TO….. what? …. rule against a decision they’d already made? It certainly gives the appearance of protecting their collective backs – at the expense of my son who was neglected and harmed.

I’m betting that this has happened to many individuals and families in the State of Michigan.

The Michigan Department of Health and Human Services can do this legal “roundabout”, according to Michigan’s Mental Health Code. (when I locate this elusive mental health code, rule or reg, I will edit this post and add that part). I had it at one time, but I have stacks and stacks of records and files and I want to get this published.

The only way to change (the unfairness/conflict of interest/lack of protection from retaliation) is through legislature (I’m told) – which I’ve looked into and believe me, it’s not happening. I am still waiting two months out for my son’s state representative to get back to me. I am not holding my breath. I’m too smart (experienced) for that now.

Isn’t that sad? It’s no-man’s land out there. But I still keep on keeping on. I’ll figure it out, and when I do it will be all for the good.

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Disability Awareness & Advocacy, Group Home, Mental Health, Music, Uncategorized

Another Brick in the Wall

In Max’s life – “Another Brick in the Wall” translates into “Another Roadblock in Life”. The constant assaults on his individuality and integrity and personhood continue. It’s moments like this, that I wish I could sit across the table from Max, we both drinking a beer, while talking and laughing “about life”. I want to hear about his hopes and dreams. I want to know how he’s really feeling.

Then I’m dragged back into the reality of it all. All of this real-life crap that surrounds him. It’s been never-ending bullshit lately. I’m feeling powerless. I hate that feeling, and usually when I get to this point (it does happen sometimes), it spurs me on and makes me even stronger… eventually. Ha!

KORN

I meant to post more regularly (I have a lot to say) – with proof that Max lives and not merely exists in a world that doesn’t recognize his humanity, but life can be cruel. I got distracted by “life”. I had to take some time to re-group and make contact with people in-the-know. This is how it is when you have a child/adult with multiple, more severe disabilities. Networking and finding resources are EVERYTHING! It’s a fact in living this kind of life.

I know that it’s been awhile.

This week I visited him in his group home. When I walked in, he was sitting in front of the tv in the common living room. Two other people were sleeping in their wheelchairs. He was slumped in his wheelchair and needed to be pulled up. No one noticed except me. He was drooling so much that the front of his shirt was sopping wet. He had a look on his face that suggested he was disinterested in whatever he was suppose to be watching on tv.

At first he looked at me, like he really wasn’t seeing me. And then, he smiled as I used his shirt to wipe the drool off his chin. He needed his hair combed. He smelled. He only gets a shower on 2nd shift every day. Apparently, it doesn’t matter if he gets up in the morning, after having a bowel movement and sweating all night, that maybe someone should have given him a good bed bath in the morning?

I guess that’s not a part of the routine in this group home. It’s probably that way in most, if not all group homes. They’re very big on following the routine for “the whole”. There is no individuality in that regard. Or maybe it’s all about who is verbal and the loudest. Therefore, Max is not verbal and not the loudest. Max is also non-ambulatory, so no one has to go after him if he runs. Then it becomes survival of the fittest. Did you get that?

And I learned yesterday, when I contacted his “support coordinator” through email (I like creating paper trails) that they’re all about discouraging me from commenting, suggesting, complaining. She said that staff did engage him throughout the day but went onto say that basically, he “couldn’t have all their attention all day”, etc.

I want to make something very clear here. More times than not, it’s not the staff that is the problem (although there are those few). In fact most care providers work short-staffed, and are forced to work long hours – mostly 12 hour shifts – for very little pay (that needs to change). I’ve seen them exhausted and disrespected. I also know that they have their own families. In Max’s case, more than a few of his care providers have included him in their own family gatherings, and I’m grateful for that – as he has no close family living near him.

My problem is with the company that they work for and their managers. My problem is also with the local CMH who should be monitoring his care and working in partnership with myself and keeping me informed. They do the opposite. Where they should be diligent in their oversight and transparent, they avoid any communication with me unless it’s absolutely necessary. They don’t continue to educate themselves and they can’t see another way; the way that it’s suppose to be in creating a safe, happy, meaningful life for my son.

I’ve been stonewalled. I never see anything documented in his notebook and neither am I offered a look-see or a verbal report. I don’t get to hear, as in, “today we used small toys for Max to pick up and drop into a container, to maintain/increase his fine motor skills”. There’s no running commentary, ever.

They inform me of NOTHING. All I know is that every time I go over there, he’s sitting in his wheelchair doing nothing, except watching tv. Or laying in his bed watching his tv / listening to talking books (which I set up for him with the Library for the Blind). Note: I told the group home manager that books on tape could be easily acquired and set up for all the residents there (it’s FREE), but did that happen? No.

Every observation/comment that I made in writing in this email was countered and I was basically called a liar and my concerns belittled or questions unanswered. I WANT to reply back…. but won’t because it’s wasted energy and it’s all frustrating the hell out of me right now. (I need to think about how to effectively deal with this.)

She said Max didn’t smell… Believe me, he did. Perhaps,“that smell” is normal for her in the group homes that she visits. She only sees Max for 15 minutes 3x month. And NOW I know that every time she sees him, she doesn’t really “see him”. Excuses. They all have these pitiful excuses and I’m made to feel like I’m an unreasonable whiner. Fuck that.

I know “they” (CMH/Group Home Management) wish that I would go away and not visit him at all. I know they wish that I would just shut up and not care and let them NOT do their jobs; that I would be like other family members who drop of “their person” and walk away.

But I won’t. Fuck them.

Max received a Dynavox Tobii. It’s all based on eye-glance. Think of what Stephen Hawking used to communicate. Someday he WILL tell me what’s happened to him and what his wants, needs, hopes and dreams are. Someday he will have his OWN voice, and there won’t be anymore cop-outs, lies or manipulating from other people who would continue to get in his way of being self-determined.

When he starts using this, over time, he will get better and better. It may take a long time and I’m sure that both he and I will be discouraged – if staff isn’t trained and/or refuse to make this device accessible for his use (Dynavox Rep and SLP are coming to his home to set up everything, program the device and train staff) when I’m not there, but you know what?

Fuck them.

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Disability Awareness & Advocacy, Music, Uncategorized

I Won’t Let Go! I Will Defy Gravity!

By The Veer Union

“Defying Gravity”

Heavy is the heart I’m holding
(it’s holding me down)
With the weight of the world with no wings
(I’m stuck to the ground)

What was once a dream?
Is lost inside a scream?
I just need the energy
So I can fight the enemy in me

(I won’t let go, I won’t let go!)

I’ve been six feet underground
Fighting to be found
But I won’t let go
I won’t let go!
I’ve been locked inside a cage
Left to rot away
But I won’t let go
I won’t let go!

(I will be, defying gravity!
I will be, I will be defying gravity!)

This is not a revelation
(It’s what I’ve become)
This is just a destination
(To where I belong)

So I will right the wrong
And rise up to the sun
I just need the energy
So I can fight the enemy in me…

(I won’t let go, I won’t let go!)

I’ve been six feet underground
Fighting to be found
But I won’t let go
I won’t let go!
I’ve been locked inside a cage
Left to rot away
But I won’t let go
I won’t let go!

(I will be, defying gravity!
I will be, I will be defying gravity!)

(I will be, defying gravity!
I won’t let go… I WON’T LET GO!!!)

I’ve been six feet underground
Fighting to be found
But I won’t let go
I won’t let go!
I’ve been locked inside a cage
Left to rot away
But I won’t let go
I won’t let go!

(I will be, defying gravity!
I will be, I will be defying gravity!)

I fell into the fire,
Then stepped into the storm
The truth is but a liar
The day that it was born
I’ll erase the lies within
To find the truth again

I will be, defying gravity…

I will be defying gravity!!

There are those moments in life, when I become weary and heartsick. Tired of what seems to be an unending battle for every little forward step I try to take on behalf of my son and others. I feel so sore, with an ache that spreads down deep into my bones, and every movement brings pain … and I weep for all the wrongs in the world. I don’t understand (and will never understand) why people hurt people, when we’re all suppose to be ONE. We’re suppose to care about each other, to protect each other… to only do good unto and for each other.

I am resting right now – just a little while along this path called Life.

And then I will pick myself up again and move – one step at a time… down the road – until I meet up with YOU.

I hope you’re looking for me too.

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Disability Awareness & Advocacy, guardianship, Uncategorized

Update: Emily Delph – Still Suffering to Survive in Michigan.

Small in stature, with severe, multiple disabilities (cerebral palsy being one diagnosis), Emily Delph continues to be large in her determination to survive a broken legal (probate court) system in Michigan and currently inadequate medical care, on the west side of this state. Michigan is called the Great Lakes, but there’s nothing great about the medical neglect and yes, abuse, happening to Emily since she was taken from her mom. Emily is languishing and deteriorating in a nursing home – when she should be home with her mom, receiving the great care she’s always received. She should be home with her lights and toys, computer, movies, therapies, community outings, music; being engaged, entertained, happy, but now….. she has nothing.

There were NO neglect or abuse charges (there never was) against Holly Delph – and the court recognizes and everyone who has testified (10/24/2019) agrees, that before Emily was taken from her home and her mom (09/17/2019), that she was well taken care of. Her health was not just maintained, but she thrived when her mom moved to stop looking to Network 180 to do what they were suppose to be in place to do (provide access to her community), and Holly moved ahead with warm water (pool) therapy and getting Emily involved in her community herself – going to special events. I will include pictures and video at the end of this post.

What actually happened is based entirely on the dislike of an older white woman towards a young, black woman – even though that black woman is severely limited (total care) physically and is nonverbal – which made Emily Delph an “easy mark” for an entitled, prejudiced, closed-minded, cruel bully to move in and do her worst. This is the type of person who can’t stand that someone like Emily would even exist – especially within “her” world, and worse, in this woman’s mind, Emily’s mom is white! Apparently, THAT was the last straw for this woman. I can’t believe that this is 2019 and there are antiquated, ass-backwards people like that still out there – but eh, look at the POTUS that we have today, who incites the worst of the worst . It’s repugnant.

REMEMBER WE MUST CONTINUE TO RESIST HATE!

When Emily’s mom, Holly Delph, got up to speak on behalf of her daughter during the Michigan Attorney General’s Elderly Abuse Task Force Tour, (which has proven to be a huge failure and mostly a PR stunt) held around the State of Michigan and in Kent County, this privileged white woman was OFFENDED. Yep, she was offended. It gets worse.

This woman had set up shop in the back of the room, as a Representative of Area on Aging in this county. You heard that right. She was suppose to be there as a support and resource for families and individuals in need. She was quite the opposite.

She was the beginning of Emily Delph’s imprisonment and medical neglect. This woman’s false accusations, without proof, sealed Emily’s fate. This was further perpetuated by a probate court system and judge who handed over Emily’s “case” (person) to a state-appointed, public guardian named Karin Van Sweden.

This Representative of Area on Aging said that Holly was “irrational” and “hitting her head”, which is not true (witnesses who were there have been located and will be providing testimony/affidavits). Holly didn’t even find out about “the why” of any of this until she went back to probate court on October 24th! Until then, she had NO real idea what happened, although there were some thoughts on this related to other false and misconstrued statements made on social media – you know…. “if it’s on the internet, it must be true” bullshit.

And to-date, Emily still does not have her wheelchair, orthotics (leg brace worth $3500), toys or clothing, while she is being held captive at The Laurels of Kent County (nursing home). Michigan’s Licensing and Regulatory Affairs (LARA) has been called in to investigate. When asked by Michigan’s LARA where all of Emily’s things are, the court-appointed, public guardian commented that she “was afraid to bring in everything because they might get lost”. Just wow. Emily’s wheelchair is customized as are her orthotics (leg/foot braces) which provide for her positioning needs, so that Emily is held in comfortable, therapeutic positioning – to keep her from regressing physically. To my knowledge these items have yet to be produced. Who knows, maybe they’ve been sold. Who cares, right?

To further explain, for those who don’t understand how Community Mental Health in Michigan works (and believe me they all work differently, depending on which county you live in) and they all interact with the State of Michigan differently as well, I have included an explanation below.

Holly had tried to work with Network 180 for quite some time.

For those who are not familiar with Network 180, this is the same as with other Community Mental Health locations (county agencies) in Michigan. Sometimes mental health in different counties, go by different names. They are all in place under the Michigan Department of Health and Human Services. They are suppose to be in place to support and serve not just those with mental illnesses; children and adults with Autism; challenging behaviors; those dealing with addiction issues, but they are also suppose to work with individuals who are developmentally-disabled (and of course their families).

Network 180 is based in Kent County (Grand Rapids), where Holly and Emily live. Network 180 was suppose to provide services and supports to Emily and Holly in the form of respite and community living supports, but because (their reasoning) Emily was “so disabled”, they couldn’t find trained/experienced workers to come in-home and those who could accompany Emily out into the community.

Unfortunately, community mental health has long been lacking in the area of providing appropriate/necessary supports and services to those who ALSO have physical disabilities – especially to those who have the severest forms. Within the State of Michigan, those who are developmentally-disabled AND more severely, physically-involved (severely, multiply-disabled) are indeed the minority within the disability community.

Those who are more medically-fragile, non-ambulatory and nonverbal are the most silent of the silent minority. Therefore, they are easily taken advantage of and too often are disenfranchised and so are their families. It’s next to impossible for these individuals and their families to fight for supports, services and their civil rights – as most of their time is spent simply getting by and surviving. So therefore my reason for trying to explain some of this to those who “just don’t know” or have no idea what’s going on here and in the State of Michigan right now.

Whether any of us would like to admit this or not; to recognize that discrimination does exist… it most certainly does. To ignore it, is not just to condone it, but to perpetuate it. Over the years, Holly “learned” that it does exist – as Emily, adopted from Haiti, is black. My understanding and I have heard this from more than one person, is that this part of Michigan is pervasively discriminatory and prejudice against those who are not white. Absolutely, attention needs to be drawn to that fact and how inhumane and disgusting that is.

And so here we are…. Or rather, here is where Emily is at.

“They don’t follow protocol about basic cleaning around stoma. There are big reasons why this nursing home has so many fines.”
and
“Emily is dying. I’m no longer going to be nice about staff. The condition I found her in was horrible. These people cant even clean a PEG.. her leg was all twisted. Found a stink bug”.
– Holly Delph –

Better times…..

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Disability Awareness & Advocacy, guardianship, Uncategorized

So much for the Michigan Elder Abuse Task Force

By Gretchen Rachel Hammond

On March 25, 2019, during her announcement of an Elder Abuse Task Force, Michigan Attorney General Dana Nessel laid out seven initiatives for guardianship reform in the state which she touted at listening sessions, directed at the elderly population who were concerned about abuses of the system by court-appointed guardians, as initiatives she could easily push through the legislature. However, the membership of her Task Force included a number of pro-guardianship organizations. Obviously, they have pushed back.

See below photos below:

The initiatives as proposed March 25, 2019 are in the left photo. The photo to the right shows the initiatives as they appeared in Nessel’s Elder Abuse Task Force news letter published October, 2019:

Of note:

1) The limitation on the number of wards has been removed. Guardians with hundreds of wards each cannot possibly ensure their well being.

2) The requirement for a court to provide written opinions as to why a relative is not suitable as a guardian has been removed. This investigation saw numerous cases in which family members were overlooked and DPOAs were tossed out without reason. The judges are again off the hook.

3) Certification by the national Guardianship Association is simply a matter of paying a $375 fee for a multiple choice exam which a Rhesus Monkey could pass.

4) The requirement that a judge sign an attestation that an accounting filed by a guardian has been reviewed and meets the fiduciary standard has been watered down to “guardian required to file accounting when they manage property of the ward.” The majority of them already do. However, as our investigation noted, there were problems such as over billing, missing money etc.

5) Emergency petitions for guardianship to require a full hearing with the ward present has been removed. Now the language simply states that such petitions can only be filed in cases that “pose a danger of imminent and substantial harm.” Since guardianship petitions are rarely filed with accompanying medical evidence, this language is not only ambiguous but utterly worthless.

6) Similarly worthless is a “Family Rights Form” since probate judges do not follow Michigan statute anyway and attorneys are reluctant to represent families challenging a guardianship. Note that such rights are no longer being “developed.”

7) The language that a guardian’s removal of a ward from their home has been enhanced to include “in a non-emergency situation.” With no accountability, a guardian could still declare that such a removal is an emergency as the ward’s money has run out and the sale is required for long term care (as they already do) or that the home is unlivable – again, something they already do without proof. Also the appraisal requirement is gone which would still allow a guardian to undersell a ward’s home.

Clearly, the Michigan Guardianship and Probate Judges Associations exerted no small amount of influence here just as they did with the 1998 and 2005 Task Forces. This legislation is still in the early stages. Who knows what it will look like if and when it is passed?

Is this enough? Feel free to weigh in. If you are going to share, please be sure to cut and paste the commentary.

The Underground Advocate: What was suppose to happen (Initiatives) and what THAT final outcome was. What a waste of everyone’s precious time and the lives of many, many unfortunate, vulnerable people and the families that love them. This absolutely INCLUDES ALL VULNERABLE PEOPLE, such as those who are severely, multiply-disabled who are remain segregated and isolated within group homes and nursing homes. Anyone over 18 years of age. This isn’t about just the elderly. The neglect and abuse are even bigger than that. Talk is cheap and actions speak louder than words.

Michigan’s AG is putting on a politically-motivated dog and pony show – at the expense of the most vulnerable in the State of Michigan. Sadly and horrendously this is happening NOW all over our country (the elderly and disabled being kidnapped and victimized) and WHY the mainstream media has not picked up on this is puzzling and questionable. Think about that one. I know that I do every single day.

My next post will be all about Emily from an earlier post (Her Name is Emily). Emily’s struggle has gotten more desperate, twisted and warped – as to why she is languishing and deteriorating in a nursing home in Michigan.

Stay tuned. Buckle up ’cause it’s gonna be a bumpy ride!

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Disability Awareness & Advocacy, Music, Uncategorized

I Will Never Surrender

Foo Fighters – The Pretender

This is one of my “fight” songs.

I have many.

Feel the music.

Fight for the people you love.

I’m posting this to remind myself and others – that speaking out on behalf of people in need, I know, is never easy. Sometimes it’s even dangerous – but when hate seems to be everywhere, we can’t rest.

We must be brave. We have to stand up, draw a line in the sand, and take exception to that hate.

We must tell the misguided, ignorant, confused, mean, cruel and evil to back the fuck up.

In anyway that we can, we must protect those who are less-fortunate and those who are considered “less than”, because I believe that THEY are the “most” of all of us. They decide who we really are as human beings. Let that sink in for a moment.

Before I begin to get deep, dark and dirty, know that at the heart of ALL that I do (say and write), is not just for my child’s sake alone – but for all of those who are struggling in a world of hurt.

I have found that in the quiet of the night, when my mind is not at rest, ideas come to me – and I accept that these thoughts come into existence almost like an outside force and as a way towards making the world a better place – in spite of those who build walls to keep people in and to also keep people out.

No matter how awful or sad it gets, we can’t ever give up. We’ve heard it said, It’s always darkest before the dawn. And so from time to time, as we wage what seems to be an all-consuming battle against the darkness, we must remain vigilant that we don’t lose ourselves as we make our way to the light of a new day.

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